Goiter and thyroid question?

I’m a 22 year old female and have a goiter. My doctor first mentioned it to me when I was about 16 and again last year.

I’ve had my TSH tested regularly as well as Free T3 and Free T4, all are normal. I have symptoms that could be suggestive of a thyroid problem but are being treated as a connective tissue disease (Lupus/Sjogren’s overlap). I’m on Plaquenil and have improve dramatically. My GP felt my goiter and said she can’t feel any nodules.

My grandma has a thyroid condition (don’t know which one but she take levothyroxine. I have a number of autoimmune diseases in my family and I also have Celiac Disease.

Is it possible to have a thyroid condition and have normal blood tests? Should I have it tested regularly?

(2blest, please don’t post your usual copy and paste answer, I’ve read it before =] )

3 comments

  • Shauna

    I’d second checking out Hashimoto’s, There seems to be an increase in the likelihood of developing Hashimoto’s if you have Celiac Disease.

    Also, how well does your doctor keep track of your Celiac DIsease? Over 50% of Celiacs, in a couple recent studies, had not healed completely or still had vitamin deficiencies after 5 years on the GF diet. If you were in that 50%, it could be affecting your thyroid or causing other problems. Oh, and as an aside, not all of these folks had symptoms even when they still had problems.

    You might want to see how your vitamin levels are, and also to do a quick check on what foods you eat that are gluten free. If you are in the USA, there’s currently no law regulating gluten free labels, so LOTS of foods carry a gluten free label that have never even been tested for gluten. You have to call up the company and find out if they test and how often to really know how gluten free they actually are. >:-(

    Also, a small percentage of celiacs are a more sensitive to lower levels of gluten than the average, and can actually still have problems even with the low levels of gluten allowed in gluten free foods in any country.

    These can be low enough levels of gluten to cause damage, but cause minimal to no symptoms…except can be enough to cause problems with, say, the thyroid and vitamin levels. Unfortunately, because our tests for Celiac Disease only look for damage after it’s become severe enough to be detected, low level damage is harder to find. We have to rely on things like, again, vitamin deficiency tests.

    This is what happened to me. After diagnosis, my vitamin levels wouldn’t come up AND my thyroid was having worse and worse problems, even though my diet was very strictly gluten free. Blood tests for rechecking celiac were good. But on avoiding all untested gluten free food and becoming even MORE strict at avoiding any food that might have contact with gluten at all, suddenly my vitamin levels, my thyroid, and the last few issues with my health improved.

    It’s worth looking into, at least. 🙂

  • 2blest2Bstrest

    I am sorry that you feel that way as it has helped many people … it is from me & since it helps people, I see no reason not to use it. I do add other info for each situation as well. I do hope that you get well anyway & sorry that I offended you.

    God help us all

  • Linda R

    Ask your doctor about the possibility of Hashimoto’s thyroiditis or Grave’s disease.

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